One of the great things about living in Hawaii is when you are on bed rest the view, the breeze, the exotic birds make for bad days in bed not so bad. Then when you’re ready to leave the house it’s just beautiful anywhere you go. So, let’s go backwards, I started feeling bad about 2 weeks ago. I just assumed it’s a flare up. My body started to go down fast, very fast. I don’t know what caused the flare up but this one took me down. I don’t know if I was exposed to COVID but I was ready for a trip to the ER. I started calling the kids to make sure they know where everything was. I’m serious the body aches was unbearable, I was back to using my breathing machine because I couldn’t breathe. I was going through my inhaler. The day the got me was when I decided to wash all of the bedding. Took everything off the bed, went downstairs to the laundry room came back upstairs and half way up the stairs I fell on the stairs and had to crawl back to the room because I couldn’t catch my breath. I didn’t leave the house I just went downstairs and my body couldn’t handle it. I didn’t have any strength to put fresh sheets on the bed. I just collapsed on the bed.
I know a lot of my peers cannot understand what Lupus is and what a Lupus flare can be like. I wish I had strength to hold a camera to show what it looks like. It’s the worse thing ever for someone to go through. It’s day 2, my left ide of my ribs and back hurt so bad. It feels like I been stomped numerous of time it still hurt to breathe. I feel like I’m going through my inhalers and if it continue then I will make an appointment. As long as I don’t overdue it I can make myself look decent and nobody would ever know what went through. Working from home helps a lot because I can slowly get back to normal at my own speed. Thank God for my hair and makeup skills because I know how to fix myself up.
It is Lupus Awareness Month so I shouldn’t be surprised that I’m back in the hospital with a flare up, this is my glam life.
