Tag: lupus warrior

Day 2 After Having A Bad Lupus Flare

One of the great things about living in Hawaii is when you are on bed rest the view, the breeze, the exotic birds make for bad days in bed not so bad. Then when you’re ready to leave the house it’s just beautiful anywhere you go. So, let’s go backwards, I started feeling bad about 2 weeks ago. I just assumed it’s a flare up. My body started to go down fast, very fast. I don’t know what caused the flare up but this one took me down. I don’t know if I was exposed to COVID but I was ready for a trip to the ER. I started calling the kids to make sure they know where everything was. I’m serious the body aches was unbearable, I was back to using my breathing machine because I couldn’t breathe. I was going through my inhaler. The day the got me was when I decided to wash all of the bedding. Took everything off the bed, went downstairs to the laundry room came back upstairs and half way up the stairs I fell on the stairs and had to crawl back to the room because I couldn’t catch my breath. I didn’t leave the house I just went downstairs and my body couldn’t handle it. I didn’t have any strength to put fresh sheets on the bed. I just collapsed on the bed.

I know a lot of my peers cannot understand what Lupus is and what a Lupus flare can be like. I wish I had strength to hold a camera to show what it looks like. It’s the worse thing ever for someone to go through. It’s day 2, my left ide of my ribs and back hurt so bad. It feels like I been stomped numerous of time it still hurt to breathe. I feel like I’m going through my inhalers and if it continue then I will make an appointment. As long as I don’t overdue it I can make myself look decent and nobody would ever know what went through. Working from home helps a lot because I can slowly get back to normal at my own speed. Thank God for my hair and makeup skills because I know how to fix myself up.

Lupus Flare Up Sent Me To The Hospital

img_8560It is Lupus Awareness Month so I shouldn’t be surprised that I’m back in the hospital with a flare up, this is my glam life.

I always say my body is like playing a game of cards because I never know what I’m going to get when I wake up in the morning. Because I’m not a person that go to the hospital for every little pain I get I’m always in bad shape when I get to the hospital. I won’t take off from an assignment I have learned how to manage and still do beautiful work while in pain. When I do say I need to go to the hospital the pain level is over 10.

This time my flare up was in my left hip and leg. It was so swollen, had redness/inflamed, and painful to walk. My day started with going to the doctor with hopes of getting a shot for the pain. Right away my doctor said, WOW, you have septic joints. Before I can get dress the ambulance was being called, and a wheelchair brought in the room. Like my doctor said, I’m so vain, I turned all that down, Oh Hell To The No!!! Then they try showing me how to use crutches, turned that down also. I promised my doctor that I was going to go to the ER, went home and waited for my husband and son to come home so they could escort me.

So now I’m at Danbury Hospital, my second home…smh. Lots of blood work was done as usual and X-Rays to see what was going on. I was given some strong meds to calm down the flare up. I’m not a fan of pills because I don’t like the way it makes me feel. Give me a cocktail any day because I’m in control and I know my limit. They gave me Naproxen, Diazepam, and Oxycodone. I now have to go see a Orthopedics to make sure I don’t have any damages with my joints/muscles from walking for a long time without seeing a doctor.

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So, I’m on bed rest for 2 days and I’m thinking positive that everything is ok and no blood clotting while traveling on Friday. Because of my history in the past I use to clot so I wasn’t able to travel for some time.

Nap Time…

 

Today’s Dr Appointments Wasn’t A Glam One

It’s been a day and I’m so glad it’s over my body need a break. I started first by going to do a CT Scan, then off to do the allergy test on my arms and forearms, then over to the CT Sinus Center, ending my appointment doing a Intravenous (IV) infusion therapy. Unfortunately, I have to do a lot of this often, in 10 days I’ll be repeating everything except the allergy test. At least I didn’t have to give blood this week. A lot of driving around today, I’m just glad to be home. How is your Monday going?

*IF YOU HAVE A WEAK STOMACH OR HAVE TRYPOPHOBIA DON’T REVIEW THE PICS & VIDEOS BELOW.