I learned how to heal myself better than any doctors or any meds that I have taken since diagnosed. I’m healing myself so I can help heal other Auto Immune Warriors. I want to teach others how they can have a life after being diagnosed. 🙏🏾💜💚🦋
One of the great things about living in Hawaii is when you are on bed rest the view, the breeze, the exotic birds make for bad days in bed not so bad. Then when you’re ready to leave the house it’s just beautiful anywhere you go. So, let’s go backwards, I started feeling bad about 2 weeks ago. I just assumed it’s a flare up. My body started to go down fast, very fast. I don’t know what caused the flare up but this one took me down. I don’t know if I was exposed to COVID but I was ready for a trip to the ER. I started calling the kids to make sure they know where everything was. I’m serious the body aches was unbearable, I was back to using my breathing machine because I couldn’t breathe. I was going through my inhaler. The day the got me was when I decided to wash all of the bedding. Took everything off the bed, went downstairs to the laundry room came back upstairs and half way up the stairs I fell on the stairs and had to crawl back to the room because I couldn’t catch my breath. I didn’t leave the house I just went downstairs and my body couldn’t handle it. I didn’t have any strength to put fresh sheets on the bed. I just collapsed on the bed.
I know a lot of my peers cannot understand what Lupus is and what a Lupus flare can be like. I wish I had strength to hold a camera to show what it looks like. It’s the worse thing ever for someone to go through. It’s day 2, my left ide of my ribs and back hurt so bad. It feels like I been stomped numerous of time it still hurt to breathe. I feel like I’m going through my inhalers and if it continue then I will make an appointment. As long as I don’t overdue it I can make myself look decent and nobody would ever know what went through. Working from home helps a lot because I can slowly get back to normal at my own speed. Thank God for my hair and makeup skills because I know how to fix myself up.
I may be chronically ill
but I’m also chronically
fabulous!…that’s my tag line!
If you’re a friend or an associate of mine you know that Lupus is one of the 4 autoimmune diseases I battle. If you been around me you know I am a pro at hiding my daily battle with wearing makeup, having big hair, and all my extraness 😂😂 only someone who’s very observant knows the truth when they look at my eyes. No matter how fabulous I dress it up I can’t hide my 👀.
May is Lupus Awareness Month. It’s the month that I usually do a lot of interviews, speaking, collaborating with organizations, posting and wearing my purple lipstick “Queen B” that I created for us Lupus Warriors with my makeup line Entitled Beauty Cosmetics
There is one special person that will always have a special place in my heart in that’s Lauren Kimberly Burnham she attend a Lupus Walk with me because she didn’t want me to be alone. I will never forget that special offer. 💜💜
If you noticed I haven’t been on social media lately because I been on bed rest. Whenever I’m gone for to many days know I’m suffering. But I will be back more fabulous then ever, don’t worry.
If you have any family members or friends with ANY autoimmune diseases be patient with them. If at the last minute they cancel, if they can’t travel, if they don’t accept an invite, don’t take it personal. We only have energy to do just a little. In when we push ourselves we pay the price…unless you’re our caretaker it’s a lot. Sending 💜 to all of my Lupus & Autoimmune Warriors out there. This month share your story, let’s stop hiding. The medical field needs to know they can’t keep pushing us to the side, we’re important! If you wear purple this month please tag me so I’ll know that you’re here for me. 💜
I just started using my Singing Bowl on Jan 1st. I know that the Buddhist practitioners started using it for greater amount of peace and intuition in their daily lives through meditation. I know that singing bowls are found outside the temples and monasteries of the Himalayan mountains. They are used as tools for meditation or alternative treatment for various illnesses like chronic pain. As you know I suffer with 4 auto immune diseases. So learning and mastering this technique is very important me.
My goal is to bring relief to myself so I can start helping others on my journey.
What do you use your singing bowl for?
It’s About That Time Again! Not only do I like to cleanse my mind but I also like to cleanse my body. I been using “The Cleaner” for a few years. Detoxing the body is a good thing. Everyone has their on way but I like the 14 days formula.
Use MUST drink a lot of water.
Use MUST feed the body.
You WILL go to the bathroom.
At the end you will remove waste pounds.
Whenever I need to release any negative energy I come to the beach to remove them so I can receive my positive blessings that’s been assigned to me.
Allowing my Chakras to be fully tuned in my Body & Mind by coming to the beach is an easy way to align and open my Chakras. Now all of my positive energy can flow effortlessly in my body. I have been doing Reiki technique on myself for the last 3 years. I believe in the healing of energy that I have stop taking about 98% of my meds. Feeding my body and mind with positive energy has been life changing.
If ASMR, Yoga, Reiki, Chakras and other Energy healing works for you, continue to feed your body with it. It was meant for you!
Close your eyes and just listen to that amazing ocean sound of water from the beautiful Hawaii ocean.
https://youtube.com/shorts/3buX7ok4ji0?feature=share via @YouTube
See You Bye & Luv You Mean It!
What Does The New 50 Look Like?! When I was a little girl, hearing the age 50 to me meant old or walking with a cane. Now that I’m 50 I don’t see that same picture of what a 50 year old person should look like. I use to ask my mom if she’s sure about my birthday because I’m not looking my age. But hunty, I feel my age. I once fallen while hiking on a wet rock and that fall took me out for days. So, yeah I don’t look 50 but my body feels 90.
Let me say this, I’m not someone that eats healthy, I drank Pepsi and Coke’s about 5 cans a day. I know its horrible for me and for my auto immune but I can’t stop drinking them, I don’t drink a lot of water. I love rum and champagne. I’m not big on exercising so my body is a little run down in the inside. But what I do well is, I take care of my skin with great skincare from La Mer & Armani and on my body beacuse I’m a beach bum, I love Sol de Janeiro products. I keep only positive things and people around me. I’m a happy person, I laugh a lot, I take naps when my body tells me and I spend a lot of time at the beach. So, that keeps my spirit happy and it shows on youthful face, I guess. I really live the ALOHA Lifestyle.
What is the ALOHA Lifestyle you ask. Here in Hawaii, ALOHA is a way of living, an attitude and expresses guidelines to help us in our lives. It’s kindness, patience, compassion, respect, togetherness, affection, empathy, peace, & love.
At the end of the day age is nothing but a number. Just live your life positive, stop being angry and do things that makes you happy.
*Makeup from my makeup line Entitled Beauty Cosmetics.
Wednesday at the Inaugaration for President Biden and VP Kamala Harris, the color PURPLE was a choice amongst the ladies. Purple has always been a color of choice for myself due to my health. Being a Lupus and Fibromyalgia Warrior I have always worn purple for strength. It was nice to see the ladies at a special and important events wearing different shades of purple. Each one of these ladies are strong and powerful in their own rights.
As you know I have my own makeup line called Entitled Beauty Cosmetics that I started with my bestie and business partner, Johnny Lumoa. When we were creating colors for our All Nighter Lipstick Collections, I knew that I needed a bold and sassy color for us Autoimmune Warriors. During our Awarness days I wanted all of us warriors to have a lipstick that we could wear. A lipstick color that was created by a warrior, someone who is living with this nasty disease. So, I created “Queen B” and I named it that because it seem to be a name that peers call me.
If you know of anyone with an autoimmune disease and you would like to gift them something special gift them one of my “Queen B” All Nighter Liquid Lipsticks. It would mean a lot to me to support my makeup line Entitled Beauty Cosmetics. I know they would love it to wear on Awarness Day.
I feel like crap but I feel crap everyday because of my Lupus so on Friday I thought it was just a regular day. I knew I would be driving with ALOHA so I left for work early so I could give myself time to get there on time. As I sat in my car I knew I did not have enough energy to get out the car. I decided to check my pressure to see what it was looking like. I carry my mobile machine with me and I check it in the morning and again when I’m on lunch.
I manage to make it inside to work but not for long. Before I knew it I was helped to one of the managers office with two coworkers holding me up. My body was shutting down. I managed to call my doctor and she advised me to go to the ER because of my heart being irregular. My husband was called and I was taken to the hospital near my home. One that I’ve been to before where they have my records in the system.
At the hospital I was checked in outside, the typical questions and the wellness check was given. I was wheeled straight in after my pressure was taken. They started working very fast on me with; Basic Metabolic Panel, CBC w/diff, Part Throm Time (PTT), PRO BNP, Prothrombin Time (PT) Sedimentation Rate, Troponin T Gen performed 3 times, Urinalysis, Complete, Reflex to C & S, CT Head without contrast, EKG 12 LEAD, XRAY Chest AP Portable.
What I found out was that my body has been struggling since I returned back to work on July 6th. Struggling from wearing a mask everyday at work. Because of my Lupus, Asthma, RA, and having high blood pressure I wear a mask in sometimes gloves at work to stay safe because of my health, being that I have a compromised immune system. Wearing a face mask for 5 -6 days a week for many hours a day I’m not getting enough oxygen to my brain. So my heart and lungs has been working hard and on Friday it had enough. I noticed some chest pains, difficulty breathing, getting dizzy, and feeling confused but I thought it was perimenopause since I’m 50, so I over looked it. I didn’t think it was because of me wearing a mask.
So, what do I do?! I DON’T KNOW. Finding a job that I could work from home is going to be a challenge and I honestly don’t know where to begin. I’m just here stressing and I know I’m not supposed to be stressing but I need to figure out what can I do. Getting unemployment is out I’m still pending since March /April to receive. I’m actually nervous about having to put the damn thing back on but if I have to wear it I will because I have to work. If anyone have any ideas please share.
Every time my husband or my son leaves our beach house to go to the store I’m always reminding them to check for LYSOLDisinfecting Wipes, Sprays or any kind of cleaning products they can find.
Because of my health (Lupus, RA, Asthma and Hypertension) I don’t leave the house. I have been in this house now for 45 days and I don’t plan to leave until it’s safe. I don’t even chance walking to the beach, nada. I get my fresh air by having the Lanai doors open while I’m sitting on the living room sofa.
So, when the guys come home they strip in the laundry room, shoes off and clothes in the wash, then they dash off upstairs. And like a crazy woman, I follow wiping down anything that they could have touched along the way. I probably have the cleanest floors in the world because I also wipe them down daily with my LYSOL wipes. I go through these wipes because I’m so afraid of bringing germs in the house.
When they come back from the store, I take one item at at time and I’m wiping down each box, or meat, or bags before it goes in my refrigerator or my kitchen cabinet. Here in Hawaii we bring our own bags so I spray them down with Lysol and let them air dry in the laundry room. Before being quarantine, I kept a container of Lysol in my car, in the kitchen, in the laundry room and each bathroom has a container. I was always a person that was scared of getting any virus, again because of my health, so I’m use to living in a bubble. Now…it’s out of control. I find myself still picking up germs from my family and I have many horrible flare up’s and have been using Albuterol more now since then ever. So, I can never run out of LYSOL, this is why it’s a big deal for me to always have.
What do you get excited about scoring from the store?